Tubular Aggregate Myopathy (also known as Myopathy with Tubular Aggregates)

- a rare disease of skeletal muscle

Axial and broadside electron microscope views of tubular aggregates in human skeletal muscle

Frequently asked questions

A Bibliography of tubular aggregate myopathy (with abstracts)

listed by AUTHOR

listed by YEAR

Treatment

Does TAM have any effect on vision?

How I Came to Walk Again - one account of the treatment of TAM with verapamil.

Electronics a boy has to have a hobby

Links

Craig's forum     Contact other folk with TAM and cheer up with Craig's (Welsh?) humour.

The TAM forum on BrainTalk     No longer recommended. Sadly Brain Talk has has had a brain failure and gutted this thread.

The TAM forum at Rareshare.org

TAM pages at the Genetic and Rare Diseases Information Center

Contact:

The usual cowardly disclaimer
Many of the drugs referred to in this site may be very dangerous and much of the information is very specialist. Seek qualified medical advice before embarking on any course of action based on this information.